Ehlers-Danlos Syndrome and Exercise: How to Safely exercise while living with EDS

Ehlers-Danlos syndrome (EDS) is a chronic medical condition that affects connective tissue throughout the body. Symptoms of EDS can range from joint hypermobility, chronic pain, fatigue and muscle weakness. Although exercise may seem like an unattainable goal for those with Ehlers-Danlos syndrome, it can be extremely beneficial in managing symptoms and improving quality of life. In this blog post, we will discuss the types of exercise best suited for people with EDS, as well as how to safely do exercise while living with this chronic condition. We also provide tips on overcoming resistance to exercise and ultimately getting started on your exercise journey. So if you have been considering adding physical activity to your lifestyle but aren’t sure where to start, read on!

How Can Exercise Help Those With Ehlers-Danlos Syndrome?

Ehlers-Danlos syndrome (EDS) is a genetic disorder that affects connective tissue. Connective tissue is responsible for supporting and stabilizing organs and structures in the body. Due to the disorder, connective tissue can be abnormally weak and stretchy. This can cause pain and instability in the joints, which can make everyday activities, like exercise, difficult. However, by following a safe exercise routine that is gradual and carefully monitored, those with EDS can reap the benefits. Low impact activities, like Pilates or tai chi, are often recommended as they donโ€™t put pressure on the joints. Strength training using light weights can also help increase strength and stability around the joints. So, by incorporating a little bit of exercise into your everyday routine, you can help manage pain and improve your overall mobility.

Types of Exercises for People with EDS

Tai Chi and EDS
Tai Chi

People with Ehlers-Danlos syndrome (EDS) should focus on low-impact exercises that don’t put too much strain on their joints. Swimming and water aerobics are great options because they provide resistance without jarring the body. Pilates and tai chi can help strengthen muscles while improving flexibility and balance. Always listen to your body and stop if you experience pain or discomfort during exercise. By following these tips, you can safely exercise while living with EDS.

Tips for Safely Doing Exercise With EDS

Swimming and EDS
Swimming

Exercise can be a fun and rewarding activity, but it can be more challenging and risky for people with Ehlers-Danlos syndrome (EDS). This condition affects the body’s connective tissues, making exercise more challenging and potentially risky. However, with a little bit of research and careful planning, people with EDS can safely exercise. Here are some tips for safely doing exercise with EDS:

– Exercise should be tailored to an individualโ€™s abilities and limits – low-impact exercises like swimming or Pilates are generally recommended.

– Doing warm up stretches before exercising can help prevent injuries while also improving flexibility and range of motion.

– Itโ€™s important to listen to your body – if you experience any joint pain or swelling, stop immediately and check in with your doctor right away!

Overcoming Resistance to Exercise

Pilates EDS
Pilates

For many people with EDS, exercise is one of the most challenging things to do. However, it’s important for overall health and well-being to get moving. If you’re living with Ehlers-Danlos syndrome (EDS), it can be tough to get started because exercise can be painful. However, there are ways to make exercise more manageable and even enjoyable. Start by engaging in low-impact exercises like walking or swimming to build up strength and endurance. If something hurts, stop immediately and wait until the pain subsides. Next, seek professional guidance from a physical therapist who specializes in EDS. They will be able to help you develop a safe yet effective regime that fits your needs. In the meantime, remember to stay positive and stay strong!

Summary

Exercise is an important part of managing EDS, and it’s important to find exercises that don’t put too much strain on your joints and muscles. Swimming, cycling, Pilates, and Tai Chi are all great options that are low-impact and won’t aggravate your condition. Make sure to take breaks if you start to feel pain or discomfort while exercising. Finally, make sure to speak to your doctor or therapist before starting any exercise program, as they can help you find exercises that are both safe and effective for your individual condition.

Conclusion

Exercise can be a great way to help manage pain and improve mobility for those living with Ehlers-Danlos Syndrome. By understanding the types of exercises that can be beneficial, as well as the tips for safely doing exercise with EDS, individuals can find ways to stay active while limiting pain and risk of injury. Additionally, making a plan to get started and overcoming resistance to exercise can help ensure that physical activity is part of an EDS management plan. With the right approach, exercise can be an important part of managing Ehlers-Danlos Syndrome.

Some good articles to read on this subject are:

  1. https://doi.org/10.1016/j.arrct.2022.100189
  2. https://pubmed.ncbi.nlm.nih.gov/29950777

One response to “Ehlers-Danlos Syndrome and Exercise: How to Safely exercise while living with EDS”

  1. […] After my initial EDS diagnosis, my geneticist encouraged me to exercise to help my joints (see this post about the benefits of exercise for those with the EDS Cluster). One thing she made certain to […]

Meet Erin

My name is Erin, and I’m dedicated to sharing my crazy EDS journey with all the other zebras and zebra lovers out there. I will be sharing my stories, tips, fitness journey, low-histamine recipes (coming soon!), and much more! My goal is to create a fun, safe space where fellow zebras and zebra lovers can come to learn, laugh, and build a community. Welcome to Living with the EDS Cluster – we’re glad you’re here!