The EDS Cluster refers to the three diseases of Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), which are commonly associated in patients. For those living with EDS, POTS, and MCAS, life can often be challenging. These conditions can cause severe physical pain, dizziness, fatigue, difficulty concentrating, and other…
One of the most common misconceptions about Ehlers-Danlos syndrome, or EDS, is that it only affects the skin. Unfortunately, this is not the case. EDS can have a profound impact on physical health, as well as mental health. While most people with EDS are aware of the physical symptoms of the disorder, many are not…
Happy New Year to all you zebras out there! As I mentioned in my prior post, I will be starting a new exercise routine this year. I hope that it will help me build back up my muscle mass, as well as help me lose the 20 pounds I’ve put on in the last two…
As mentioned in my prior post about the low histamine diet, histamine is a natural compound that is produced in the body during allergic reactions and during food digestion. It can cause inflammation, allergies, and other health problems. Therefore, it is important to reduce histamine intake through a low histamine diet. This diet eliminates foods…
*Disclaimer: I am not a medical professional. Please speak to a doctor before starting any new exercise routines* Exercising is hard for us EDS zebras! Zebras with the EDS cluster have a hard time with exercising and fitness for a multitude of reasons. My chronic fatigue is the biggest deterrent from exercising for me. I’m…
Are you looking for a way to improve your health and wellbeing? A low histamine diet might be the answer. A low histamine diet is a diet that helps reduce levels of histamine in your body by avoiding foods high in histamine. This diet has been found to have many health benefits, including reducing inflammation,…
Ehlers-Danlos syndrome (EDS) is a chronic medical condition that affects connective tissue throughout the body. Symptoms of EDS can range from joint hypermobility, chronic pain, fatigue and muscle weakness. Although exercise may seem like an unattainable goal for those with Ehlers-Danlos syndrome, it can be extremely beneficial in managing symptoms and improving quality of life.…
I am the Murphy’s Law of people – if something can go wrong with a body, it is going to go wrong with mine. Whatever unlikely or rare ailment I have at the time will confuse doctors and leave me misdiagnosed. That was until I was FINALLY diagnosed with EDS and the EDS cluster. Like…
My name is Erin, and I’m dedicated to sharing my crazy EDS journey with all the other zebras and zebra lovers out there. I will be sharing my stories, tips, fitness journey, low-histamine recipes (coming soon!), and much more! My goal is to create a fun, safe space where fellow zebras and zebra lovers can come to learn, laugh, and build a community. Welcome to Living with the EDS Cluster – we’re glad you’re here!